related video Inclusion: Ruby's Story: This video is about a girl named Ruby, who has Stromme Syndrome. Ruby's mom shares her initial hesitation about

22 Jan 2018 Despite doctors making dire predictions about Ruby's future, she has called Stromme Syndrome, which causes microcephaly (small brain),

Before Fame. She developed a rare genetic condition called Stromme Syndrome. Trivia. Her mother used the support they found on Instagram to raise $15,000 on GoFundMe in under a week for a future support dog. Family Life Ruby is a 12-year old with an extremely rare genetic condition called Stromme Syndrome, which causes microcephaly, vision impairment, bowel obstruction, short stature and developmental delays. There are only 12 known cases of this condition in the world! Stromme syndrome is an autosomal recessive congenital disorder affecting multiple systems with features of a ciliopathy.

Orange Socks is with Angie and Ruby. is with Angie and Ruby. Stromme syndrome is a rare genetic condition. It affects multiple bodily systems and causes anomalies in the intestines, eyes, and skull. Learn more here. The core complex of Stromme syndrome consists of intestinal atresia and ocular abnormalities of the anterior segment. The ocular anomalies consist of variable amounts of angle dysgenesis, anterior synechiae, corneal leukoma, iris colobomas and hypoplasia, sclerocornea, cataracts, and sometimes microcornea.

There is as yet no cure available for Stromme syndrome, but the patient can often be treated to at least help ensure their survival and/or enhance their quality of life. Many patients will need to undergo surgery on their digestive system, and/or on their heart.

15 Oct 2019 Meet Ruby. She is one of twelve people in the world diagnosed with Stromme Syndrome.

Ruby is a 12-year old with an extremely rare genetic condition called Stromme Syndrome, which causes microcephaly, vision impairment, bowel obstruction, short stature and developmental delays. There are only 12 known cases of this condition in the world!

Ruby Ruby Ardolf ma 12 lat. Jest jedną z 12 osób na świecie, która zmaga się z rzadką chorobą genetyczną zwaną zespołem Stromme (Stromme syndrom).

36 k liker dette. Ruby is a 15-year-old with a rare genetic condition called Stromme Syndrome. Angie is her momma and fearless advocate. Angie and Ruby, Lakeville, Minnesota. 33 tn gillar. Ruby is a 15-year-old with a rare genetic condition called Stromme Syndrome. Angie is her momma and Ruby is 14 and has a rare genetic condition called Stromme Syndrome.
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Syndrome Hkeaia · 319-981- Ruby Salvetti. 641-572-2877.

What is Stromme Syndrome? - Rare Gems Blo .
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Angie and Ruby 💎 Ruby is 16 and has Stromme Syndrome 👩‍👧 Angie is her momma 🦮 @charliehelpsruby is her service dog ♥️ Our motto:

At birth, these findings led doctors to believe that Ruby was completely blind in both eyes.

LAKEVILLE, Minnesota, June 13, 2017 (LifeSiteNews) — Ruby Ardolf is a 12-year-old with a rare genetic condition called Stromme syndrome that causes vision impairment, microcephaly, intestinal

To learn more about Stromme’s syndrome, including its causes, signs, and outlook, keep reading. Definition. Stromme syndrome is a genetic disorder. There is as yet no cure available for Stromme syndrome, but the patient can often be treated to at least help ensure their survival and/or enhance their quality of life. Many patients will need to undergo surgery on their digestive system, and/or on their heart. Our heart has 4 chambers: 2 ventricles and 2 atria. The smaller chambers, the atria, are separated by a wall known as a septum.

She is one of twelve people in the world diagnosed with Stromme Syndrome. What a special inspirational girl.